Progress Since The 2014 ALS Ice Bucket Challenge

ALSInfographic snapshot

Ever wondered what the outcome was of the ALS Ice Bucket Challenge in 2014 that swept the entire nation? A lot of money was raised from that challenge which is being used for research and research projects for curing ALS.  Read the infographic below to find out more.

Text description of infographic right below it.ALS Association infographic

1. $115 million donated through the ALS Ice Bucket Challenge during an 8 week period in 2014.

“The Ice Bucket Challenge was a game changer. It showed us that when each of us contributes – even just one small act – it adds up and accelerates our pathway toward a treatment for ALS.”

 – Nancy Frates ‘Ice Bucket Mom’

2. $77 million dedicated to research, advancing the search for treatments and a cure.

3. 15,000 patients per year helped with community-based services through their local ALS Association chapter.

4. 3 new genes discovered in the last two years, which will help us identify new therapies.

“With support from The ALS Association, we have already identified a new gene that we hope will lead to promise therapeutics in the future.”

 – Bernard Muller, Co-founder, Project Mine

5. 150 + Active Research Projects funded by The ALS Association since the ALS Ice Bucket Challenge.

“With Ice Bucket Challenge donations, The ALS Association was able to then double down on its investment in antisense technology that targets C9orf72, the most common genetic cause of ALS, which will likely enter clinical trials early in 2017.”

 – Don Cleveland, Ph.D., Cleveland Lab, La Jolla, California

6. $2 Billion cost to develop ONE new drug. Your support is urgently needed.

7. 30% increase in funding to support the National ALS Registry, the single largest ALS research project designed to identify ALS cases throughout the entire United States.

8. $7.5 million to the ALS Research Program at the Department of Defense to study why veterans are twice as likely to develop the disease.

9. 100% increase in funding to ALS Certified Treatment Centers of Excellence to enhance patient care.

“We were so proud to earn the distinction as an ALS Certified Treatment Center of Excellence…This certification and the funding helped us attract more patients and to substantially enhance the care we were providing.”

 – Sandeep Rana, M.D., Alleghany Neurological Associated, Pittsburgh, Penn.

10. 1st ever guidance submitted to the FDA to speed the development and approval of new ALS treatments.

11. 9 global research collaborations that have already resulted in 2 new antisense drugs targeting S0D1 and C9orf72, going into clinical trial in patients.

Your support has enabled significant progress in advancing the search for treatments and a cure for ALS through research, care services and public policy. Our integrated mission ensures that no stone is left unturned when it comes to ending this disease. Visit ALS.org to learn more.

Source: ALS Association

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